“Our beloved son Henry passed away. He had the softest blue eyes, an easy smile and a contagious giggle. We always surrounded him with love and he returned it, and so much more. Mary and Richard,” Engel wrote on Twitter.
The TODAY regular shared a link to a memorial page on the Texas Children’s Hospital website, which offered more details on Henry’s life and his battle with Rett syndrome, a genetic brain disorder without a treatment or cure.
According to the National Institute of Neurological Disorders and Stroke, Rett syndrome can cause loss of use of the hands, problems with walking, seizures, slowed brain and head growth and intellectual disability.
Born on Sept. 29, 2015, Henry was slow to reach certain developmental milestones as an infant. After a series of medical exams and a genetic test, doctors discovered that he had a mutation in his MECP2 gene.